Disability Living Allowance
Disability Living Allowance (DLA) is a non means tested benefit paid to any UK resident who have a mental or physical disability....
This benefit is made up of two components.... the care component for those who have difficulty with personal care and the mobility component for those that experience difficulities with their mobility.
Depending on the severity of your requirements there are differant eligibility sections.. care low rate, middle rate and high rate, whilst the mobility component is only payable in low rate and high rate.. Disability Living Allowance
Action for ME guide to filling in the DLA form here
Action for ME guide - the home visit/medical for adults and children here
Disability Living Allowance factsheet re DLAhere Premiums for disabled people
If you suddenly get DLA and are on Incapacity benefit in particular you may not get told about this benefit. Carer's Allowance:
This is a benefit to help people who look after someone who is disabled. You do not have to be related to, or live with, the person you care for. Attendance Allowance:
A tax free benefit for the over 65's who have an illness/disability and require help with personal care.
Many people find the DLA form very complex and repetitive and struggle to fill in the required information and there are many websites offering guidelines on how to fill in the DLA form, Benefits and Work being one in particular.
For those who are struggling your local Welfare Rights Office can also be very helpful (usually contactable via your local council office). They can help to fill in the form and if later down the line you need to go to appeal.. then they will help and guide you every step of the way.
There is also a document style of form which you can hand to your GP on another part of this board, that may be very helpful when doing the DLA form. The link is here
(2nd post down)
Direct PaymentsDirect Payments
Direct payments are local council payments for people who have been assessed as needing help from social services, and who would like to arrange and pay for their own care and support services instead of receiving them directly from the local council.
A person must be able to give their consent to receiving direct payments and be able to manage them even if they need help to do this on a day-to-day basis.
They are another way of accessing help and some people with ME/CFS do get assistance through this route. The Blue Badge Scheme
The Blue Badge Scheme is an important service for people with severe mobility problems that enables badge holders to park close to where they need to go. The scheme operates throughout the UK, and is administered by local authorities who deal with applications and issue badges. Blue Badge how to apply for it