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roger
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After 12 years of trying, I'm now A OK


« on: July 30, 2017, 04:40:10 PM »



The title of this board implies that I’m recovered. So am I? The answer to that is ‘I think so’. That’s not very encouraging so let me explain. At age fifty-eight I was fit and healthy. A short while later I wasn’t. I then spent much of my time in bed and this continued for a considerable period – years in fact. I saw several NHS doctors, all of whom offered me nothing. I then saw several allopathic specialists privately, all of whom promised to ‘get to the bottom of this’ but didn’t. I then ventured into the alternative world and did achieve some worthwhile help from two people, but not enough.

I’ll soon be seventy-one, and I’m not as fit and well as I was at fifty-eight, so what I don’t know is how different I’d have been now if I hadn’t spent close to twelve years struggling with health issues. Of course I’ll never know the answer to that, but I’m now symptom free and can do pretty much what I want to do. I look around me at people of similar age – and younger - and note their arthritis, their diabetes, their heart disease, and in a couple of cases, their cancer. Almost all of them have a complex daily pharmaceutical routine, whereas I’m happy and content, and in a very good place. Please feel free to reach your own conclusions as to whether or not that’s a recovery.

Three or four years ago I wasn’t anything like as ill as I was in the early days, but I was far from well. Then one morning I thought, ‘This is my responsibility, I’m on my own and I’m going to sort this shit out.’ The list below consists of what I believe to be the keys to ‘my recovery’. I’m not talking quick fixes, I’m talking about a wide ranging protocol that I developed via trial and error and which took well over a year to bear fruit – but when it eventually came, that fruit was sweet. It takes a long time to develop a chronic illness, and you don’t heal overnight. There are NO magic bullets.

Some of my approach is common knowledge, some is science based, and some is just my opinion, some of which is controversial. Regarding ‘my opinion’, I won’t differentiate by saying ‘I believe’ or ‘I think’ at every verse end because that would be tedious, but please do bear in mind the ‘just my opinion’ element and feel free to challenge anything I say.

My list -

1. Dump your label, it’s meaningless and will stress you out.

2. Take responsibility – You’re in charge. You. Nobody else.

3. There are four elements to you – physical, mental, including the belief system, emotional and spiritual. Nurture them all.

4. What you put in and on your body becomes you – junk in junk out.

5. Doctors aren’t God – they only know what they’ve been taught and not all of what they’ve been taught is true.

6. Digestion – achieving a well working digestive system is vital. All other physical elements are secondary.

7. Water – CLEAN water and lots of it is essential.

8. Supplements – quality matters.

Yes, it’s a short list totally lacking in detail. That’s deliberate. There is much need for expansion and clarification, and I’ll be happy to provide expansion and clarification, but only if you want me to because I see no point in putting in hours of work – effectively, that would be a short book – if nobody is interested. So it’s up to you, our forum members and visitors – ignore this board or get involved by asking questions, offering criticism and taking part in discussion via responses to this and possible future threads. Whether or not this board develops beyond this thread is in your hands.

I really do hope that you’ll get involved. If you’re interested, please express your interest via replies to this thread. Many thanks for reading this far.


IMPORTANT NOTE – I’m NOT a doctor and I have NO medical training, and this should be born in mind if you’re reading any of the threads that I might post on this board. I only know what I know from personal research and experience, and what worked for me, which may or may not be what will work for you. I do not and will not encourage anyone to resist or ignore conventional medical advice if they feel that such advice is the right way forward for them. This board is for those who don’t feel that, those who’ve been through ‘the system’ and achieved little or nothing, or who are at least disappointed with what they’ve achieved thus far. Also, any new symptoms you develop may be nothing to do with why you’re a member of or a visitor to this forum, and such symptoms should always be checked out - initially by your GP then, if necessary, by a specialist. Finally, as a responsible adult it’s your job to take personal responsibility for what you do and what you don’t do.























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angeleyes40
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« Reply #1 on: July 30, 2017, 06:45:24 PM »

I for one will be interested ☺

To be honest I dumped the label such a long time ago, it was dragging me down, since then I have tried to ignore the bad and embrace the good as there is no point in ignoring the better days  just incase it creates a bad day as I was missing out on so much.

Xx
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neptuno
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« Reply #2 on: July 30, 2017, 07:28:25 PM »

Me too. Bring it on !
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TJ
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« Reply #3 on: July 31, 2017, 08:21:30 PM »

A thoughtful, inspiring and measured introduction Roger.  thumbsup

Can I ask when you became aware of gut health and what measures you took.   Also the length of time before you became aware it was beneficial.  Have you increased soluble fibre in your diet or opted for supplementations or both?

Thanks

Talen

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roger
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« Reply #4 on: August 01, 2017, 08:08:41 AM »

Thanks for showing interest, AE, Nep and Talen.

If enough interest develop, Talen, I will be doing a thread on digestion – probably headed ‘Physical – digestion’, but this isn’t the right thread to go into detail. I aim to work down the list on this thread in order. How quickly that happens will depend on how much motivation I have, and that will depend on how much interest/enthusiasm develops for this board. However, if you have any urgent questions, email me and I’ll do my best to help.

Whatever, I’ll post the next thread shortly and we’ll see where we go from there.
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CeeDee
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« Reply #5 on: August 01, 2017, 10:51:44 AM »

Thanks Roger. I have had a lot of problems with digestion over the last few years. I have already made several changes which have improved the situation greatly, but I am always happy to hear other suggestions, so looking forward to that thread in particular.
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roger
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After 12 years of trying, I'm now A OK


« Reply #6 on: August 01, 2017, 11:41:27 AM »

Hi CeeDee,

Thanks, for posting and expressing some interest.

Looking at where I am at the moment with the many threads I’m planning to post if there’s enough general interest, it’ll be some time before I get to ‘digestion’, which is a big and important issue, but there are lots of ‘big issues’, all of which I think have to be addressed to create a real chance of recovery. So I’ll make you the same offer I made to Talen.

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TJ
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« Reply #7 on: August 01, 2017, 07:40:53 PM »

Thanks Roger.

I am happy to wait.
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CeeDee
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« Reply #8 on: August 04, 2017, 09:13:01 PM »

Thanks Roger, I am also happy to wait.
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roger
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After 12 years of trying, I'm now A OK


« Reply #9 on: August 05, 2017, 05:24:54 AM »

Thanks, Talen & CeeDee - the offer remains open. When and if something appears on this board will depend on the degree of general interest (or lack of) is generated by the board.

Best wishes to you both.
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treepixie
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« Reply #10 on: August 07, 2017, 07:13:33 PM »

I'm am also very interested
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roger
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After 12 years of trying, I'm now A OK


« Reply #11 on: August 08, 2017, 05:04:51 AM »

Hi Treepixie - I love your name  smile

Thanks for posting - to be honest, I'm close to discontinuing this board because there has been so little interest shown so far. But your post has made me less close than I was.

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TJ
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« Reply #12 on: August 09, 2017, 10:27:01 AM »

When you say little interest do you mean to the forum generally or just activity on your board?

The site seems very quiet compared to a few years ago.
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roger
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After 12 years of trying, I'm now A OK


« Reply #13 on: August 09, 2017, 10:53:59 AM »

Hi Talen,

Specifically the board simply because there's a lot of work going into it and not just work by me. If the response isn't there, you have to question whether the work could be better done elsewhere.

But yes, more general involvement from members and visitors would be very welcome. As you say, it was very active a few years ago, but I suspect Facebook has drawn people away, which is a shame because info on Facebook soon falls down the list and disappears. Hey-ho, a sign of the times, I guess.
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« Reply #14 on: October 24, 2017, 11:27:44 AM »

Hi Roger,

Thank you so much for posting about your experience. I have just read the Introduction and will make my way slowly through the others. I am at the point where I have just given up all hope of any improvement. As we know with ME/CFS one size doesn't fit all but hearing of other's experiences is really helpful.  Thanks again.

 Wink
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roger
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After 12 years of trying, I'm now A OK


« Reply #15 on: October 24, 2017, 11:56:15 AM »

Hi Anne,

Thanks so much for taking the time to post.

First, please, please, PLEASE never give up hope of improvement. If you think you can't improve, you'll be right. But in my experience, if you think there is a way to improve and that you'll find it, you'll also be right because what you think really does matter.

The threads on this board don't include every tiny bit of detail - if they did, they'd be far too long. But my hope was and still is that they'd raise questions, which those reading them would/will ask. So as you read, if you have questions, please ask them. And if there are points you disagree with or want to argue with, that's fine, too  smile

Finally, although this board concentrates on CFS/ME, my belief is that it can be equally valid for pretty much any chronic illness.

I hope you'll gain something worthwhile from this board.
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Sesha3
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« Reply #16 on: January 13, 2018, 02:29:40 PM »

Ooh this sounds really interesting & im going to have a read of your other posts. I agree about dropping the label-I feel it is keeping me sick to keep thinking of myself as sick & I have been beginning to think of myself as on the road to recovery instead. I'm really pleased for you that you are at a point where you feel well & can enjoy life again. Thanks for sharing this info with us all  smile
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roger
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After 12 years of trying, I'm now A OK


« Reply #17 on: January 13, 2018, 04:18:35 PM »

Hi Sesha,

Thanks for 'getting it' - what you just said sums up the whole point of 'dumping the label' - it's destructive!
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