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Author Topic: Hello from Kelly  (Read 256 times)
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KellyB
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« on: July 12, 2018, 04:39:19 PM »

Hi fellow spoonies
Just a little note about me. I am 31 years old and I'm engaged to my wonderful partner.
I've been poorly for about a year. It wasn't always as bad as it is now. I went to the doctor about a couple of months ago because I just felt rotten all the time.
I was sent for blood tests and the only thing that showed up was a deficiency in vitaminD. After more appointments and chats my doctor suspects CFS and has referred me to a specialist at the hospital. I'm currently waiting for my appointment.
Thank you for taking the time to read my little story and I hope everyone feels as well as they can.
love and spoons
Kelly
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roger
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After 12 years of trying, I'm now A OK


« Reply #1 on: July 12, 2018, 05:08:09 PM »

Hi Kelly, and a big welcome!

I hope you get some worthwhile help from the 'specialist'. In the meantime, please shout if perusing the form raises and questions. We're here to help wherever we can.

Did you get your D3 levels sorted out? They're very important.
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KellyB
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« Reply #2 on: July 12, 2018, 06:01:01 PM »

hi Roger, thank you for your reply.
i'm taking vitamin D tablets but no idea if they are working or not.
can i just ask, is there a reason you put the word specialist in quotation marks? i'm so scared they won't help me
kelly
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roger
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« Reply #3 on: July 12, 2018, 06:13:17 PM »

Hi Kerry,

Re D3 - what GPs should do but usually don't is dose depending on your result and retest a couple of months later. The result then should IMHO be at least double what they consider to be 'satisfactory'.

Re 'specialists', the quotes were an indication of my experience with them - a specialist should know what their specialist subject is all about and how to deal with the problem. In my experience, they don't. But, and this is important, my experience was over ten years ago and things may have moved on. So I'd go to your appointment with an open mind and see what transpires.
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KellyB
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« Reply #4 on: July 13, 2018, 10:36:00 AM »

I see. This will be my first experience with a specialist so as you say I will just keep an open mind and see what happens. I have an appointment with my gp in 2 weeks time, Iíll ask her what she thinks about the vitamin D
Thank you
Kelly
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roger
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« Reply #5 on: July 13, 2018, 11:22:21 AM »

Good luck, Kelly, I hope yoiu get a worthwhile result  fingerscrossed

If you get a limp response from your GP re the D3, push her! Getting to good levels is very important.
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KellyB
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« Reply #6 on: July 13, 2018, 06:07:21 PM »

Ok I will do. Thank you xx
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roger
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« Reply #7 on: July 13, 2018, 06:20:44 PM »

You should be looking for a level of at least 150 nmol/L - GOOD LUCK.
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chill
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« Reply #8 on: July 15, 2018, 08:41:51 AM »

Hello Kelly

I too am due to see a specialist in august, i was diagnosed in 2010, was ill for about 18 months and relapsed about 3 months ago, in my opinion due to the major surgery i had, but who knows!  I am going to go with an open mind but also knowing, from my first bout with this illness, that at the end of the day recovery is down to ourselves, i did have CBT the first time round which did give me some good coping skills but i dont want to "cope" i want to live, and that is basically what i intend to say to the specialist, either find out what is actually wrong and causing all the ME symptoms by actually caring enough to test my endocrine system/vitamin levels etc or leave me to figure it out myself!  I take a lot of supplements and do a lot of research.  I hope you get somewhere, this illness is so misunderstood and hard to live with, also, thank you for your reply to my "hello" thread!  Look forward to chatting, this is a very friendly forum.
chill
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