April 26, 2018, 02:08:39 AM *
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 1 
 on: April 24, 2018, 07:38:38 AM 
Started by roger - Last post by roger
Hi Jan, and welcome to the forum.

Did you get an answer - intuition/gut feeling?

 2 
 on: April 24, 2018, 06:42:39 AM 
Started by L A - Last post by JanBlackSmith
Hi, Darliní! Look what Iíve brought yer!

 3 
 on: April 24, 2018, 06:41:36 AM 
Started by roger - Last post by JanBlackSmith
I was at a loss regarding what to do next. I actually asked for help with no idea who I was asking

 4 
 on: April 23, 2018, 06:21:13 AM 
Started by KV_Tofu - Last post by roger
Well you've given him some good advice. Hopefully, he'll benefit from it. But being the only breadwinner and having a baby and an unwell wife to consider isn't easy to deal with. Fingers crossed he'll learn to slow down.

 5 
 on: April 22, 2018, 10:59:19 PM 
Started by KV_Tofu - Last post by KV_Tofu
Things got  censored awful today. My.husband has been showing signs of stress and anxiety, hyperventilation etc. He kept denying it but it's one of those things you don't often realise is happening to you until too late. And about a month ago he told me he felt weak and slept all day. Then today he was even worse. Actually, his abilities mirrored the way I feel and my serious lack of ability when I push against my baseline more andpre and more through the day
 He was literally incapable of doing nothing. I had to do all the childcare today. And I could cope up to about half way through the day, thanks to my good pacing I'd been doing for the last 2 weeks.
And now I can't get to sleep
 Thankfully my husband went to sleep at 9pm. I am grateful he doesn't have a mind too busy to get to sleep. I hope this is only "severe adrenal fatigue" for him. I have been giving him advice all day about how to handle what he's feeling including staying calm, stopping the second he needs to (pacing) and how he needs to basically meditate and relax every single moment he isn't doing anything mandatory. When he gets better I will work on his daily schedule. He is the worst for not "stopping" doing things. If something needs doing he will do it.
His current schedule would be wake, change baby, give bottle, feed self etc. Leave and drop off baby at childminder on the way to work. I know for a fact that he rushes. No doubt he wakes and stresses about his morning and it needed be the case. It's even worse that every second he has spare, he spends on his phone
 This is a very stressful activity for body and mind.. I don't think people realise this. And when he is literally giving his mind no chance to STOP doing things... Well, I told him to stop ages ago and give himself time to relax but in true human nature he waited until it was too late to pay attention. My advice to him will be to spend his spare time doing something calm. On the way to work he should stare put the window. At lunch he should take a proper one and not eat and run back. He should take breaks from his screen and also sit at his desk in a particular posture to reduce physical stress... Things like this. His issues need to be temporary or this family is non existent and my baby will have  to go elsewhere.....
The only "benefit" from this is that now my husband understands what I deal with every single day.

 6 
 on: April 19, 2018, 12:03:01 PM 
Started by KV_Tofu - Last post by KV_Tofu
Yeah.. I don't think I can talk to these people anymore. It only causes me stress because they're throwing negative feelings my way and won't even listen. Currently I am helping my friend who potentially has fibro and definitely has severe anxiety and stress problems. She is open to my suggestions (cfs/me suggestions are still applicable as it's about helping the body heal). And so I will stick to that as my good deed until I am myself fixed enough to deal with stubborn people.

 7 
 on: April 19, 2018, 11:59:50 AM 
Started by KV_Tofu - Last post by roger
Next time someone tells you that getting your mind working for you (rather than against you) canít have a positive effect on physical issues, ask them how they think placebo works. If they say it doesnít, you COULD point them to the overwhelming evidence that it does, which is why Pharma is mandated to measure its drugs against placebo. But you'd probably be wasting your time and it might be more sensible to stop talking to them, which appears to be what youíve decided to do. And for that, I say good on you  smile

 8 
 on: April 19, 2018, 11:13:20 AM 
Started by KV_Tofu - Last post by KV_Tofu
Officially leaving the cfs/me Facebook groups I'm part of. The attitude of some people stink. They just don't even try. Yes there's subsets of cfs/me and what may work for one person may not work for another.. but the amount of anger people show towards you I'd you make suggestions on how they can help their body heal. Suggestions on working on their mind or their diet is met with aggression (which tells me for one that their mind definitely needs some work!). I've been called "ableist" for suggesting that someone work on managing their mind to help manage their pain (apparently only an ableist person would say that because otherwise i "would know it was crap". Actually there's plenty of evidence on line about a- the minds role in creating pain or pain level and b- the power of it generally (someone kind mentioned that the mind is so powerful that Buddhist can manage all sorts of things!).
Noone on the Facebook groups are helping themselves or each other with the aggression and stress they are causing each other. I'm so glad that the people that post on this forum are open to ideas for help.

 9 
 on: April 18, 2018, 10:33:31 PM 
Started by Biological_ME - Last post by Biological_ME
Agapanthus: I assume that you mean tilt table tests re. orthostatic tachycardia and no, it's purely exercise based heart problems and a lot of reactivity to different foods...

 10 
 on: April 18, 2018, 03:55:14 AM 
Started by roger - Last post by Napapong
I like it very much. It is very fun.

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