December 15, 2018, 01:17:45 PM *
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 1 
 on: December 11, 2018, 07:20:09 PM 
Started by MarsupialBlueberry - Last post by neptuno
Also sorry MB I havenít been around so much to chat sooner. The variable nature of our symptoms is a real pain up the bum !  If you need to rest the listen to your body...itís when the best healing happens.
Hope you are coming through your current blip...I will see you there later !

 2 
 on: December 05, 2018, 06:08:19 AM 
Started by MarsupialBlueberry - Last post by roger
Sorry you've been having a bad spell, MB, and I hope you're getting through it now.

 3 
 on: December 04, 2018, 11:26:13 PM 
Started by MarsupialBlueberry - Last post by MarsupialBlueberry
Thanks for your post, and I am sorry I did not reply sooner: I've been having a bad time of it. I will try to take on board what you are saying and not dismiss it out of hand. You are not me, but it's good to not exclude any options to be sure Smiley

 4 
 on: November 24, 2018, 11:34:19 PM 
Started by Wits_End - Last post by Wits_End
Request for mandatory consideration now sent off: 2 pages of A4 from her, and 2+ from me Smiley 

 5 
 on: November 24, 2018, 11:32:15 PM 
Started by Wits_End - Last post by Wits_End
I'd forgotten I'd posted this here!

Thank you to everyone who signed: enough signatures were collected for Parliament to debate this, which happened about a month ago.  Let's hope it will bring about some change.

Here's the link to the result: https://petition.parliament.uk/petitions/221033

 6 
 on: November 24, 2018, 09:05:17 PM 
Started by Rainbow - Last post by agapanthus
Thanks Rainbow. It took me most of this year to decide to stop the dancing as I loved to do it, but in the end the payback was not worth the brief pleasure. It was taking me days to recover from. However I have been part of the group for such a long time that Jo who leads it would like me to stay in touch if I can. In reality I suspect that will fade out somewhat but they are doing a short project right now on Votes for Women and as I have done a poem for it, I will be in the show early Dec reading the poem. Maybe a farewell spot then.

It was lucky that I had begun to do the Oxfam volunteer work about 3 years ago, just for a couple of hours mostly. However the person doing most of the online bookshop work that I am doing has just moved to Exeter. I think it might have folded if I hadn't taken it over, and it felt like the right time without the dancing. I can do as much or as little as I need to do depending on how I feel so it's nicely flexible.

Thank you too - so glad I have made a difference for you today.  Smiley

 7 
 on: November 24, 2018, 04:14:50 PM 
Started by Rainbow - Last post by Rainbow
Sorry to hear you had to give up the dance/theatre group but understand why. Good to hear you are enjoying the charity shop volunteering gives a purpose to the day & a good thing you are doing too.

Well done to you!

We find ways to keep going don't we.

And you have made a difference to me too!

XXX  Kiss

 8 
 on: November 24, 2018, 02:44:20 PM 
Started by Rainbow - Last post by agapanthus
Ah well, I know how important this stuff is, and I would hate to misinform someone. I have dealt with my own benefits and my son's over the years, but thankfully I am retired now so my burden is lighter on that score.

Thank you for the offer of help Rainbow. I will bear it in mind if I need an listening ear. Nothing special going on in my life really - I had to give up the dance/theatre group I was in due to too much PEM pain, but I have taken up more hours volunteering at a charity shop where I am sitting down mostly so I do get out still.  I don't have much else of a social life really but I enjoy doing what I do there.

 9 
 on: November 24, 2018, 11:53:31 AM 
Started by Rainbow - Last post by Rainbow
And that's what I love about you aggy!

I know you will be honest & I love you for it.

I'm going to sit on it for a week then decide it does not state a date you have to send it back by

Can't tell you how much you have helped me yet again

If you ever need help with anything or need a chat you know where I am or if you prefer I can give you my email address ( I think I have before ) hump CFS brain fog!

 Kiss

 10 
 on: November 24, 2018, 10:57:38 AM 
Started by Rainbow - Last post by agapanthus
I cannot say 'no' categorically Rainbow as I am not an expert in this area.  From what I have read it doesn't, but I cannot be certain of that and would hate to misinform you unintentionally.

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