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 on: Today at 07:36:00 PM 
Started by Sar-Lou90 - Last post by treepixie
Also forgot to add does your company have a flexible working policy?

 on: Today at 07:34:53 PM 
Started by Sar-Lou90 - Last post by treepixie
do you have  occupational health where you work, my manger was unsympathetic and would not let me work from home, until I saw occupational health and they told him  it would be beneficial to me to work from home 2 days a week, until then I don't think he realised what ME does to you, I'm like you I have to work full time as I can't afford not to.

 on: Today at 02:50:25 PM 
Started by Sar-Lou90 - Last post by roger
Hi again, Sar-Lou,

But how long can you continue going to the loo to cry?

I really do sympathise, but however I look at it, I can see no way that you can continue as you are. At this stage I'd suggest you research 'sickness rights' - here might be a good place to start - it's from the employer POV -

You've been diagnosed with a genuine debilitating illness and you're GP has offered to sign you off work. If only for a short period, there's no way you could be sacked for doing that. Then you'd have a reason to talk to you employer (the HR dept rarher than your manager if they have one), about the options for shorter hours or working partly from home.

But whatever you do, you cannot thrive by continuing with the current situation. Does your other half work? If so, maybe there's a way to adjust your lifestyles to reduce costs, enabling you to work shorter hours. Nobody likes to adjust their living standards downwards, but sometimes it's really necessary and I see you as a case in point.

 on: Today at 02:02:16 PM 
Started by Sar-Lou90 - Last post by Sar-Lou90
Thank you for replying Roger. And no, not taken harshly at all. I completely understand and appreciate everything you have said. I just feel given the current state of my finances (I have been teetering on the edge of losing my house due to late rent payments for a couple of months now) not being in employment is just not an option for me. I feel afraid to ask my employer about the possibility of flexible working from home some days. I feel afraid to tell anyone I work for that i am struggling. I feel afraid to admit to my employer that my capabilities may well not be where they think I need to be at this point. I feel like a burden if i am honest.. And i could be judging my new manager too harshly too early without really getting to know her, but from what I have seen she doesn't posses any kind of empathy or sympathy to other people's struggles.. She's incredibly hard-faced and does not believe in letting any personal issues become a part of the workplace. Hence why I am too scared to open my mouth. I've been sat at my desk all day fighting back tears as I just feel so low and exhausted. I hide in the toilets at work to cry and then come back and try to act normal...

 on: Today at 12:02:35 PM 
Started by Sar-Lou90 - Last post by roger
Sar-Lou, and welcome.

Six words really stand out from your post - 'I cannot go on living like this'. You're right, you can't, and if you do you'll simply go further downhill until you can't do ANY of the things you're now doing - all the stress you've been though, a demanding full time job that's about to become even more demanding, two hours a day on a bus, a rubbish diet. All of these things are the very things that will lead to that downhill slide if you have CFS/ME.

So you have a decision to make - to decide what your priorities are - continue what you're doing, which will have only one outcome, or have a sustained period away from work during which you can work on recovering your health, and by sustained, I mean as long as it takes.

Sorry if all that sounds harsh, but I'm afraid it's reality.

Best wishes, and please think seriously about this - it's REALLY important if you're to stand any chance of recovery.


 on: Today at 10:43:52 AM 
Started by Sar-Lou90 - Last post by Sar-Lou90
Hi. I was diagnosed with M.E about 5 years ago now but have been suffering for 10. I work full time in a demanding office role for a retail company and having just managed to avoid redundancy, I am now stepping into a new position within the same company. The new role will be much more demanding and will have me under a different line manager. This year i have gone through a long term relationship break up, and make-up. I have moved house 2 times, my other half has lost several jobs due to redundnacy issues and this has left us in total financial chaos (We have actually cancelled Xmas in our household this year and I did not celebrate my birthday in November due to lack of money). My father was also arrested a sent to Prison this year for some deeply harrowing and traumatic crimes. I am not coping well and as you all know stress is a huge trigger for my M.E. My current manager has ALWAYS been sympathetic and supportive of my health and personal issues but my new line manager is much more hard faced and does not believe this condition is "real". My GP keeps telling me i need to accept his letter to be signed off sick but I do not feel that would benefit me long term, and given our financial struggles I cannot afford to risk losing my job. Has anyone ever had to request reduced hours, or flexible working hours with the aid of a note from a GP? My doctors said flexible working might be an option, as my new role means I do have the ability to work from home if it was necessary. Reduced hours is another one, however that would mean a loss in wages which I really can;t do right now. I really need some advice here. Can my GP write a letter to state that working from home some days of the week would be helpful to me, or even that it would be essential for my health and well being? I do not drive (Never learned as my M.E was so bad i could not change gears, now looking to learn in an automatic) and live in North Devon so i use the bus service to commute to work everyday. It's just shy of an hours journey there and back daily, and it makes my day even longer. By the time I get home i am too exhausted to even make or eat dinner. I live on toast and my other half does his own. I cannot keep living like this, I need time to heal emotionally from the events of this year and to give my body a chance to rest. I need a longer term fix rather than being signed off sick in the short term. Any advice AT ALL would be so appreciated. My new manager is a bit of a tyrant and i am so worried about asking for flexible working....     

 on: December 02, 2017, 06:27:53 PM 
Started by neptuno - Last post by roger

 on: December 02, 2017, 05:47:33 PM 
Started by neptuno - Last post by neptuno
I found myself humming “Wombling Merry Christmas” round the supermarket today.
No wonder I feel stressed  Wink

 on: December 02, 2017, 07:24:04 AM 
Started by watford29 - Last post by roger
Hi Watford, and welcome to the forum.

What you describe certainly isn't classic CFS, but CFS can present in many different ways, so I'd never say never, though to me,your description sounds like a digestive issue - do you eat a good, clean diet and drink plenty of clean water? Are the Allopathic doctors still doing tests or have they reached the stage of putting a label on you and giving up? If the former, it makes sense to continue with them, but if the latter, I'd think in terms of seeking out a Naturopathic doctor, who would be more likely to find the cause and treat it naturally.

Good luck.


 on: December 01, 2017, 07:51:58 PM 
Started by watford29 - Last post by watford29
Hi all im a newbie.... basically i have a constant pain in my upper abdomen upper left side under ribs.. back pain on left side which is constantly there random headaches that come and go.. metallic taste in my mouth pains in armpits and upper arms sometimes in hips and thighs and lower legs. Also feel tired alot of the time.. stool that is sticky and fatty. Ive had abdominal ct all clear
Neck to pelvis ct scan with contrast.. showed enlarged vroin nodes and enlarged liver.. not sure why as dont drink but docs not concerned..
Colonoscopy and gastroscopy all clear
Flexi cystoscopy all clear
Ct head.. all clear.
Abd countless bloodtests all clear.
Do ny symptoms sound like cfs/me? Doc seems to think so but im not sure. And has anybody else suffered with all of these sumptoms?
Alpreciate all responses as im worried like hell as when i googleeverything comes back to do with pancreas.
Many thanks in advance people

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