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 on: June 22, 2017, 03:29:17 PM 
Started by KieraCole - Last post by roger
Thanks for understanding, Kiera.

 on: June 22, 2017, 03:22:14 PM 
Started by KieraCole - Last post by KieraCole
Seems fair enough Roger, I appreciate that. If members are spamming, they ought to be banned

 on: June 22, 2017, 03:03:55 PM 
Started by KieraCole - Last post by brian c
I will not be buying as I said I already use some of the ingredient's and the care co-ordinator see's no benefit compared to what I already take

 on: June 22, 2017, 03:02:43 PM 
Started by KieraCole - Last post by roger
Hi Kiera, thank you for responding so quickly, that’s much appreciated.

We regularly get ‘success stories’, many of which are fake, and we take them down very quickly. The reason your post wasn’t taken down is that it didn’t seem fake – everything you posted seems genuine. However, currently, I have two concerns –

1. Some ‘odd’ forum behaviour from two people who’ve posted, which displays some traits that spammers use.

2. You indicated Oxford uni testing, and BioBalance talk of seven years research but provide no details, which is VERY unusual for a supplement provider – they shout from the rooftops when they have good research/testing/trials. Also, no phone number???

I don’t know whether they are genuine or not – my instincts aren’t working well today – but I’m not convinced that they are. So unless someone can provide me with the ‘science’ I’ll maintain my ‘be wary’ stance. But I won’t shut down the thread, I’ll leave others to reach their own conclusions.

And I have no reason to ban you, preferring to accept that your objective in posting was to help others.

 on: June 22, 2017, 02:44:24 PM 
Started by KieraCole - Last post by KieraCole
Hi Roger,
Sounds like you feel I'm a paid promoter of the product :( I'm sorry if I came across that way it wasn't my intention. I don't necessarily endorse any products and obviously do your own research to make your mind up on anything yourself rather than going of me. I just shared my experience, what I was told and what I observed. If you feel this is misleading, it's your site and I won't get angered if you decide to close my thread as spam and even ban me. I know what it's like to have CFS, and I know I was part of a study because I was filling questionnaires to record my progress. I'll try to get in touch with my last CFS group leader to ask her about the role of Oxford University in the trials

 on: June 22, 2017, 02:23:02 PM 
Started by Jayne73 - Last post by Jayne73
Hi, I was wondering if anyone has experience of the Oxfordshire University hospitals CFS/me service (NHS) I have been waiting for my referral for a long time now and wondered if it's worth the wait? I thought not at first but I see Oxford seems to have a few research projects going on at present. Anyway I'm wondering what to expect as my last referral for cfs many years ago in Staffordshire resulting in the only treatment being CBT. Many thanks

 on: June 22, 2017, 02:13:13 PM 
Started by KieraCole - Last post by roger
Thanks for posting that, Brian. A member has drawn my attention to certain posts on this thread. I’ve considered these and looked into the posting history of the members involved. I am now more suspicious than I was earlier, though not yet suspicious enough to remove the thread. I’ve contacted the original poster and requested further information/evidence and await a response. Also, the member mentioned above told me something that the product providers offered which I find to be virtually impossible. The reason for this post is to suggest delaying any proposed purchase at this stage. The choice though is yours.

 on: June 22, 2017, 01:59:16 PM 
Started by KieraCole - Last post by brian c
I have had my care coordinator look in to this for me and she can find no info apart from what is listed here no trails or tests and no contact number for the supplier  as I was considering purchasing but she doesn't think there would be anymore advantage over what I take now as I already take most if the ingredient's 

 on: June 22, 2017, 09:38:26 AM 
Started by KieraCole - Last post by roger
Hi Jayne

From time to time a new member appears and immediately promotes fake products. I've seen this many times over the years and I DON'T think this is so in this case. But I suspect that's the possibility that W_E was referring to.

So, please don't worry. Even if this was the case, and I repeat that I don't think it is - I'd have deleted the post if I did -, you didn't start the thread so it's not referring to you.

Good luck with the product, and I know that forum members will be looking forward to hearing how you get on with it.  smile

UPDATE - the first post on this thread made reference to testing by Oxford University. To be on the safe side I decided to look at this testing. I can find no reference to it on the Oxford Uni website or on the BioBalanced website, and surely they'd reference it on their website if it existed, wouldn't they? Maybe I've missed it, but for now I'd be a little suspicious. Therefore, if considering the purchase of this product, I'd ask the supplier to guide you to the appropriate page on the Oxford Uni website. If they can't, I wouldn't order. If you've already purchased, I'd do the same thing and return the product for a refund based on the fact that it was bought on the basis of false evidence if they can't provide it. Let me stress that the fact that I couldn't find any reference doesn't mean that it doesn't exist. But please be wary. Also,
 I think there's always a need to be wary of websites with no phone number

 on: June 22, 2017, 09:17:16 AM 
Started by KieraCole - Last post by Jayne73
Why should it matter how long someone has been signed up to the forum for? I'd love feedback from anyone regarding this product bona fide or non bona fide. I have had cfs for 15 years and I am about to try this product. I'd like to think that my feedback is as valued as anyone's.

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