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 1 
 on: August 12, 2018, 02:11:24 PM 
Started by chill - Last post by roger
Hey, chill. For what it's worth, I think you're in a 'need loads of rest' phase as the moment, so don't worry about how quick you come back. Again for what it's worth, when I needed loads of rest, it drove me crazy thinking about the 'wasted time' etc. That was a BIG mistake. So when you need prolonged rest don't look at it as a pain in the arse, look at it as necessary but pleasant part of your healing process - wallow in it!

I'm glad you're feeling a tad better today emotionally - people often don't realise how vital getting emotionally balanced is in the journey to wellness. Never lose faith in that journey. It DOES have an end point.

 2 
 on: August 12, 2018, 01:51:21 PM 
Started by chill - Last post by chill
Hi Both, i am a little better today, exhausted but not so emotional.  To get back to see the surgeon i would have to go through the whole referral process again as i was discharged, and i dont have the energy for it at the moment so will just have to put up and shut up for a while.  Too tired to type much but wanted to say thanks for your replies and i will check in again soon.
chill

 3 
 on: August 11, 2018, 05:21:25 PM 
Started by chill - Last post by agapanthus
Well it's now nearer 7 in the evening rather than 7 in the morning, Chill, so I hope that things have gone in the right direction for you as the day progressed. A ((hug)) from me too. Sometimes I know it just feels like all too much to deal with, and the things on offer don't seem like the right thing either.

Some good suggestions there from Roger. I have had years of coping with acid reflux or at least pain in the upper gut with reflux sometimes. Also was diagnosed with gastritis many years ago too. I believe in my case that my thyroid wasn't up to scratch at the time even though it was being treated with thyroxine so that and going through the menopause really exacerbated things. Years on now, and I have found that restricting certain foods helps for me. I cut out gluten about 8 or 9 years ago, and that helps, along with avoiding sugar. It will be different for us all, but on a really bad day I would eat just vegetables like carrots and potato, as it didn't happen with them. I used HCL with betaine for low acid for years, but I don't think I need that now but it is definitely a factor for many.

I have heard that cluster headaches are dreadful. Are you getting any help with them? Sorry I cannot really advise anything for them as I don't know much about it, but can understand that alone would put a dent in your mood let alone the rest.

 4 
 on: August 11, 2018, 12:07:16 PM 
Started by chill - Last post by roger
Hi, chill - NEVER worry about 'having a moan' here. That's what the 'having a bad day' board's for - get it off your chest! Re the sinus op, have you reported back to your surgeon? If not, perhaps you should. If you have and haven't got anywhere, maybe salt water via a neti pot might help, assuming it's just a not healing well issue. Re reflux, have you tried keeping a food diary? And have you ever had your stomach acid levels checked? - reflux is caused by LOW stomach acid as often as not.

For now though, I'm really sorry you're feeling so down.  hug. I know the hug won't help much, but it's the only thing I can think of at the moment and at least it won't do any harm!

 5 
 on: August 11, 2018, 06:05:37 AM 
Started by chill - Last post by chill
not sure if this should be in "so you've had a bad day" as its only 7am but i am crying and i dont even know why!. have only been up an hour and i was sat in the garden with the cat and floods of tears just came from nowhere!!

i think it is because i am dealing with so many "little" things as well as the CFS and they are really getting to me....constant back ache that no one will do anything about, surgery on my sinus in january that does not seem to have healed, cluster headaches, acid reflux etc etc.......

and the other thing is i hate moaning abot it and bringing everyone down, so sorry!

my psychiatrist wants me back on anti deprassants but they just numb everything, i am pretty sure that whatever is wrong with me its not a prozac deficiency so i just dont want to go there.  I have already had to go back on pregabalin for my anxiety and i hate being on that, i dont want any more meds!

anyway, typing through tears is hard so will leave it there, hope you are all having a better day than me!
chill x

 6 
 on: August 06, 2018, 08:44:28 AM 
Started by GreenJuice - Last post by chill
Hi Greenjuice

sorry, i have only just seen your reply, had a rough weekend pain wise so have been in bed!  I am glad you are feeling a little more positive.  I too have just bought audiobook "the power of now".  I got to the second chapter and what he said was making so much sense and felt so profoundly "about me" that i had to order the paper version too so that i can highlight and annotate it!  I think it will really help us.  I love the quote, it speaks to me about "starting again", a new life so to speak, and i think this illness really forces you to look at your life and figure out what you can do to change for the better, or plant yourself metaphorically!! Thanks for sharing it.  At the end of the day we all just have to take it one day at a time, there will be bad ones and good ones and i agree with you that acceptance of that it the beginning of getting better, once we stop resisting what is and accept it we will have more energy to put in to your wellness and soon we will be able to take it two days at a time...then three....etc, hopefully! Take care.
chill

 7 
 on: August 05, 2018, 02:25:21 PM 
Started by roger - Last post by roger
When I wrote this thread last year, one of my main concerns was fluoridated tap water and I suggested the Berkey water filter to get rid of this. However, whilst the Berkey remains my favoured option, Iím very aware that it is unaffordable for many. At that time, I was aware of research saying that boron neutralisers fluoride but I wasnít convinced that the research was conclusive enough. Now I am, and I believe that 3mg a day of boron is enough to neutralise the amount of fluoride youíre likely to get in your drinking water, and you can get a 250 day supply for about £10 - https://www.amazon.co.uk/Now-Foods-Boron-3mg-Capsules/dp/B0095D30HI/ref=sr_1_6_a_it?ie=UTF8&qid=1533477807&sr=8-6&keywords=boron+3mg

Also, boron is good for your bones, your muscles, your skin, your digestion and for if youíre fighting candida Ė not a cure for this, but helpful.

Sounds like a no-brainer to me.

 8 
 on: August 05, 2018, 07:42:10 AM 
Started by ElizaabethR - Last post by agapanthus
Ok Eliz. I hope you get some sense out of them!  fingerscrossed

 9 
 on: August 05, 2018, 07:32:00 AM 
Started by ElizaabethR - Last post by ElizaabethR
Thanks aggie for the reply and the link to the legislation.  I understand the no backpay rule in this case. 

The other query about the final weeks of the Dla claim I'll ring Dwp tomorrow. Just need to know for my budget  how much the final DLA payment will be.
Eliz x

 10 
 on: August 05, 2018, 07:07:02 AM 
Started by ElizaabethR - Last post by agapanthus
Hello there Eliz. I did not know the answer to your first question so I googled it. I found the answer on the Benefits and Work Forum as someone else had asked the same thing. Unfortunately it seems that the legislation was written so that you do not get any back pay. I think the post also answers your 2nd reply. I have just woken up so my brain not fully in gear.....I will just copy and paste the B & W reply post below (from their forum) and hopefully it makes sense.

'It's defined in the PIP (Transitional Provisions) Regulations 2013

www.legislation.gov.uk/uksi/2013/387/contents/made

and in particular Regulation 17

In summary the rules are

- the DLA claim remains in payment for a further 28 days
- the PIP Decision applies from the day after the DLA ends
- there is no backdating if the award is higher under PIP nor is there any recovery of DLA if it is lower.

Both DLA and PIP are paid in arrears, usually four weeks in arrears, although some claimants had their DLA paid three weeks in arrears and one week in advance.

Feel free to argue your case with the DWP but do not expect to be successful, this has been challenged at the UTT and the legislation has been upheld.'

So.... it's been challenged at an Upper Tribunal level and it has been upheld.

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