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 on: Today at 12:10:57 PM 
Started by roger - Last post by roger
The videos on this link might be of interest to some members/visitors - https://cfsunravelled.com/resources-2017/?awt_m=3dwcdmktNgJhT8.&awt_l=AQxJ6

 on: February 21, 2018, 05:35:05 PM 
Started by Clementine - Last post by agapanthus
Hello Clementine
I wanted to say 'hi' and welcome you to the forum. I am probably not the best person to give advice on pacing myself, as I have always been very poor at it. I think it's particularly hard to do if you have had phases where you function better and then things get worse for a while - maybe this is the case for you, and you are needing to readjust?

Sorry to hear that you have suffered from ME/CFS for such a long time. It was that which made me wonder how you have been coping previously? Did you perhaps start out worse and then improve a bit and begin to work and now are needing to readjust because your energy is limited and doesn't stretch as far? How have things been for you and did you begin to work recently, or was it OK before?

The other thing of course is that the body can be going through other issues that may impact more some times than others (e.g. if you are female and about to start a period, or if you are fighting off a virus), and so you then may find it even harder to recover than at other times.

 on: February 20, 2018, 02:36:44 PM 
Started by Clementine - Last post by roger
Hi Clementine, and welcome to the forum.

I'm sorry to hear that you've 'hit the wall', which is something we all do from time to time, but the consequences of which are far more severe for those with CFS.

I can't say for sure that they will, but I hope that one or the other (or both) of the following links might help -



I hope you recover sooner rather than later. Good luck  fingerscrossed

 on: February 20, 2018, 01:57:49 PM 
Started by Wits_End - Last post by Clementine
I have this problem as well and I do have CFS. I often feel like I am very warm and feverish but my body temperature always turns out to be lower than normal, around 36C. Although, I don't have problems with assessing the temperature of drinks I think.

 on: February 20, 2018, 01:53:22 PM 
Started by Clementine - Last post by Clementine
Hi all,

I have suffered from chronic fatigue since I was about 15 (I am now 25). I am really struggling with noticing signs of when I have done too much. After I do too much I can be unwell for a long time, several weeks. I find it very difficult to identify when it is time to stop and rest because once I start to get symptoms like jelly legs and complete exhaustion it is already too late. I have tried limiting myself to a certain amount of hours of work, and I thought I was doing a good job until the side effects of chronic fatigue hit me again today. I am getting so frustrated with it and would really like some advice about how other people with chronic fatigue phase themselves and how to notice the signs before it is too late. I am feeling very desperate for any kind of help as my GP is not helping me and saying I am just suffering from depression, which I am not. 



 on: February 14, 2018, 06:26:03 AM 
Started by CeeDee - Last post by roger
Good on you, CeeDee  thumbsup smile

 on: February 14, 2018, 01:04:20 AM 
Started by CeeDee - Last post by CeeDee
I sent an enquiry to my MP asking if she was planning to attend it, and outlining some of the reasons this debate was important to me. I got a favourable reply.

 on: February 09, 2018, 04:52:45 PM 
Started by kittenmittens - Last post by kittenmittens
Hi Lordbark,

Yeah, when you find the healthcare/social care/etc worker who just gets it, it is great, they can help so much.

I think of my energy like a budget, and if I push past my limits that's like going overdrawn, and I'll need to pay it back, and good sleep and rest are like putting money in the bank, using energy is spending it.

Sorry I can't write much at the moment, I'm already somewhat overdrawn and still have things I need to do today like make dinner, but I will rest tomorrow.

 on: February 09, 2018, 04:45:35 PM 
Started by Lordbark - Last post by kittenmittens
Yeah,  that is one downside to the subway, there's no guard, so if anything happens you're on your own.  And in future maybe no driver either, seems like a really bad idea to me.

I'm in crash mode too at the moment, just doing what needs to be done, resting when possible, but I'm okay, getting by.

 on: February 09, 2018, 09:38:20 AM 
Started by CeeDee - Last post by agapanthus
Thanks for the link CeeDee. It will be an interesting debate I hope!

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