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Author Topic: Investigative journalist David Tuller looks at the £5m PACE Trial  (Read 2166 times)
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wntk
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« on: October 23, 2015, 01:12:48 AM »

The journalist, David Tuller DrPH, on Wednesday posted a substantial piece on the PACE Trial:

TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
http://www.virology.ws/2015/10/21/trial-by-error-i/

There's an introduction and summary at the start if you don't want to take on the whole thing.

ME Network have also posted their own summary piece on section 1:
http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/

Section two of David Tuller's piece is at:
http://www.virology.ws/2015/10/22/trial-by-error-ii/

Cort Johnson has done one of his easy-to-read pieces on it here:

http://www.cortjohnson.org/blog/2015/10/22/eporter-shreds-chronic-fatigue-syndrome-pace-cbt-get-trial/
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Keela Too
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« Reply #1 on: October 23, 2015, 05:56:26 PM »

Blooming brilliant!  Cheesy
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My ME Blog Just ME Check the Index for some posts on Pacing
May 2015 Awareness post: Well enough to Drink Coffee?
Anne56
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« Reply #2 on: October 24, 2015, 02:12:24 PM »

I have just posted with a link TRIAL BY ERROR. I think that all ME/CFS sufferers need to be aware of this. Obviously, many in the medical profession aren't aware of how skewed this trial was and the recommendations for GET and CBT should be ignored.
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Anne56
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« Reply #3 on: October 24, 2015, 02:13:40 PM »

Thanks for the other links wntk.  Wink
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wntk
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« Reply #4 on: October 27, 2015, 01:30:03 AM »

Summary of the three pieces (from October 24)

http://www.meaction.net/2015/10/24/investigate-journalist-exposes-pace-trial/
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wntk
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« Reply #5 on: November 04, 2015, 11:33:55 PM »

New part out today:
"Trial By Error, Continued: Did the PACE Study Really Adopt a ‘Strict Criterion’ for Recovery?"
http://www.virology.ws/2015/11/04/trial-by-error-continued-did-the-pace-study-really-adopt-a-strict-criterion-for-recovery/
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Keela Too
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« Reply #6 on: November 05, 2015, 09:05:09 AM »

And the #RetractPACE petition continues to gather signatures at a phenomenal rate.

Please sign and share widely
http://my.meaction.net/petitions/pace-trial-needs-review-now
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May 2015 Awareness post: Well enough to Drink Coffee?
Slow_Leopard
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« Reply #7 on: November 05, 2015, 01:37:25 PM »

I think wording here is very important.  Policy makers within the NHS should not use this trial to indicate that CBT is a magic bullet treatment for CFS.  This does not however prove that CBT has no benefit in treating a CFS diagnosis.

CBT might have benefits in treating many medical conditions and in the absence of other treatments is at least worth trying.  Funding for CBT in CFS is a tricky issue as it would be helpful if all CFS sufferers were offered CBT and could actually get it in a reasonable time frame.  It would not however be practical to fund such a treatment scheme given there is insufficient evidence of even a general improvement in quality of life.

CFS/CBT is the religious debate of medicine.  "There is no evidence for any other creator treatment therefore many in the Church NHS assume there is a creator treatment . . . and thy name is God CBT"

I have seen many times in the past, various CFS groups denouncing CBT entirely which is the same thing as the researchers confirming it entirely unless either side can provide proof.  One side not being completely right does not make the other side completely wrong.

Again I understand this may not be where this thread was going, but I urge people to think about the above as I believe it can undermine the efforts of patient groups and charities, which in this case should be to demonstrate the PACE Report as discredited, nothing more, nothing less.
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Keela Too
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« Reply #8 on: November 05, 2015, 04:10:25 PM »

Hope you still signed the petition? Wink
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Justincorne
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« Reply #9 on: May 20, 2018, 08:06:52 PM »

Is there a link to BCAAs on Phoenix rising you can point me too with information? Thanks sushi

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