Very new to the whole idea that I might have CFS, but already seeing what a frustrating condition it is to deal with.
I've an appointment with rheumatology soon for a possible diagnosis of fibromyalgia (after a year of thinking my symptoms were the menopause). Fibro seemed to fit my symptoms perfectly until March when, after struggling on at work through very physical jobs I felt I couldn't do (but without a "condition" I could not be excused from) I suddenly felt a shift into what I now see as CFS. A few months ago, the pain would come and go and sometimes I'd feel fine. Now I've felt completely exhausted for a month and even driving the car makes my wrists / arms / shoulders hurt enough to keep me awake at night.
I expect it'll be easier to get a diagnosis for fibro than for CFS, and at least that will help a little in communicating with my employer, but I'm anticipating figuring things out myself with the help of forums like this.
Signed off work at the moment on the basis of pain, but wondering how to explain that it's no longer all about the pain...I'm exhausted!