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Author Topic: Ph Manometry  (Read 1157 times)
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neptuno
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« on: April 19, 2017, 07:09:03 PM »

Had the probes inserted today. Have to sleep with probe in place overnight and return tomorrow lunchtime. Help me through the next 16 hours !  Undecided. This is such a struggle......
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neptuno
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« Reply #1 on: April 19, 2017, 08:24:07 PM »

14 hours and counting...... cry
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roger
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« Reply #2 on: April 20, 2017, 05:53:12 AM »

Yikes, nep, not fun  hug

But hey, maybe it'll be worth it. Maybe it'll show up something useful  fingerscrossed
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neptuno
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« Reply #3 on: April 20, 2017, 07:04:57 AM »

3,5 hours to go........ crap sleep
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roger
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« Reply #4 on: April 20, 2017, 07:28:05 AM »

Concentrate on how good things will be after lunch! In the meantime, here's another  hug
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neptuno
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« Reply #5 on: April 20, 2017, 04:42:14 PM »

The day just got better and better...

I had to travel out of my health authority area to Hereford hospital for this test and so stayed at a B&B as it was done over two days. Just getting ready to check out and go and have the final tubes removed when the proprietor knocked on the door to say she had reversed into my car. Joy.

I went and had the tube and monitor removed (by a crack-handed nurse) and took the opportunity to go and see the mappa  mundi and Magna Carta at Hereford Cathedral. It cost a fortune to see the mappa mundi (a rip-off) and the Magna Carta is on tour until July.

My energy bucket is well and truly drained 😢
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roger
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« Reply #6 on: April 20, 2017, 04:52:29 PM »

GRRRRRRRRRRRRR ----  hug hug hug
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agapanthus
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« Reply #7 on: April 20, 2017, 09:23:30 PM »

Apologies for not commenting earlier on your post Neptuno. My computer has been out of action but just repaired. What a ghastly procedure. You are very brave - braver than I am.

Having the B & B proprietor reverse into your car, just about takes the biscuit doesn't it?

It doesn't sound as if you will ever want to go back to Hereford, one way and another...... hug

When will you get the result, and how are you feeling today?
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neptuno
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« Reply #8 on: April 21, 2017, 08:31:36 AM »

Slept like a log last night   bedtime2

Got a raw patch of skin on my nose where plaster was stripped off attached to tubes  sad
Muscles ache all over but otherwise ok today thanks Agapanthus x.
Takes a week to send results to my consultant and then expect to be called into clinic to discuss.
Have a trip to Manchester to make next weekend so need to replenish the energy bucket !
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agapanthus
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« Reply #9 on: April 21, 2017, 09:17:36 AM »

Well done Neptuno, and glad to hear you slept so well. That's so important for healing. I hope the results are helpful.
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Talen
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« Reply #10 on: April 28, 2017, 05:21:46 PM »

Not been on the board for a while so missed all this.  I went through the Oesophageal Manometry and Phmetry prior to surgery in 2010.  Chloraseptic throat spray was a godsend as it numbed the back of my throat.  Be interested to hear your readings ie DeMeester Score and lower oesophageal sphincter (LOS) pressure.

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neptuno
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« Reply #11 on: April 28, 2017, 07:06:27 PM »

Hi Talen... s_hi
Results should be with my consultant next week, he said he would call me into clinic to discuss results. So waiting to hear with an appointment.
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Talen
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« Reply #12 on: May 03, 2017, 01:14:30 PM »

My LOS pressure was 3mm Hg (normal is 7-11mm Hg).  They told me my lower sphincter had basically stopped working.  As it happened so quickly (symptoms for 8 weeks which did not respond to very high dose PPI's), the surgeon said the likely cause was an auto-immune disease and mentioned scleroderma.  I read that it messes up your lower oesophageal sphincter.  I mentioned CREST Syndrome (the milder form) to the GP last year as my fingers are starting to bend. He said its basically a case of watch and wait.

Hope you get better results than I did.  fingerscrossed
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neptuno
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« Reply #13 on: May 03, 2017, 02:26:09 PM »

I'm kinda hoping it disgnoses something. So far I've been threatened with a NG feeding tube, PEG and Botox in the stomach, and more PPIs......which all seem too drastic to me without actually knowing what is causing the swallowing symptoms ! I'm struggling to hold on to my weight despite high calorie meals and Fortisip / Forticreme high protein drinks. It's taking a long time to complete the tests 😢
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Talen
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« Reply #14 on: May 03, 2017, 03:05:22 PM »

Yes its a long time on the NHS.  I paid privately for it and also the gastric corrective surgery as the wait was too long and my employer was enforcing the sickness/absence policy. Unbeknown to me, I had an umbilical hernia (I thought it was an age thing lol).  I got that fixed for free!

I did the Fortisip and also liquidated food for 3 weeks after the surgery.  Liquidated food is horrible after a few days as it all tastes the same  sad



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neptuno
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« Reply #15 on: May 03, 2017, 05:41:59 PM »

What did you have corrected and was it successful ?
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Talen
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« Reply #16 on: May 07, 2017, 02:25:47 PM »

Nissen Fundoplication.  They wrap the top part of your stomach around the lower sphincter to reinforce it.  It corrected the reflux but i can no longer burp or vomit.

It left me with Barrett's which is pre-cancerous.  I have a one in twenty chance over the course of my life of getting junctional oesophagogastric adenocarcinoma which has an 85% mortality in one year.  I have surveillance endoscopy (OGD).  In the US its every 3 years.  In Spain its every 2 yrs.  In the NHS its every 5 years (typical eh!).

Have you had your results back?

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neptuno
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« Reply #17 on: May 07, 2017, 03:45:38 PM »

Not had results yet Talen. They are winging their way from Hereford to my consultant.
The Nissan sounds like what I had done years ago for a hiatus hernia ? I had endoscopy and biopsies just before Christmas and absorption tests which he said were ok ......it's like working in the secret service trying to get info from consultants  rolleyes

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neptuno
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« Reply #18 on: May 09, 2017, 06:27:25 PM »

What a nightmare chasing results today.....
Hereford say posted to consultant...consultant says not received  38
Meanwhile I'm stuck in the middle watching them bat responsibility on each other.  bang head bang head bang head

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agapanthus
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« Reply #19 on: May 09, 2017, 06:46:46 PM »

How dreadful - some days it feels as if the NHS are incapable of getting the simplest thing right. Why the heck can't they use modern technology - surely quicker and more efficient instead of relying on the postal service?
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Talen
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« Reply #20 on: May 09, 2017, 07:00:20 PM »

Yes, they do Nissen's for HH's as well.  They can undo themselves although they would have seen this in your preliminary investigations.

I imagine the delay is frustrating for you.  Hope the results arrive soon to put your mind at ease.

 fingerscrossed
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neptuno
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« Reply #21 on: June 15, 2017, 10:38:32 AM »

Results are in !
Hypercontractality of the oesophagus causing dysphagia problems.
Suggests a trial of nifedipine plus one weeks rifaximin to clear intestine of any bacterial infection. (Though test didn't show any so not keen to take them and risk upsetting the gut flora even further !) glad I'm looking at other ways to heal the gut with help of nutritionist
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agapanthus
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« Reply #22 on: June 15, 2017, 12:04:20 PM »

Good to hear that you have an explanation at long last for some of your problems Neptuno. Really hope you can make some progress now. I hope that the nutritionist can help!  thumbsup
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roger
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« Reply #23 on: June 15, 2017, 12:16:16 PM »

Please feel totally free to ignore this, nep, but the one thing that healed my gut - over a 4/6 month period - was a high quality organic slippery elm bark powder - 1 teaspoon in a glass of water or smoothie twice a day. The reason I stress good quality and organic is that I tried some that was neither and it achieved nothing.
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neptuno
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« Reply #24 on: June 15, 2017, 12:24:37 PM »

Am taking permAvite at the moment which contains slippery elm  clap
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