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Author Topic: Fully recovered after 6 months on CFS reverse formula  (Read 2315 times)
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roger
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After 12 years of trying, I'm now A OK


« Reply #25 on: June 13, 2017, 02:58:34 PM »

Hi Jayne,

I wish you all the luck in the world and that it really benefits you  fingerscrossed

And I'm sure there are lots of people here who'd love to know how you get on  smile
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Jayne73
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« Reply #26 on: June 13, 2017, 03:15:04 PM »

I'll definitely report back and keep
You all updated.
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roger
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« Reply #27 on: June 13, 2017, 03:30:17 PM »

Thanks, Jayne - I know there are many who'll really appreciate that  Kiss
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adambeyoncelowe
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« Reply #28 on: June 14, 2017, 11:28:56 AM »

Thanks, Jayne!
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Wits_End
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« Reply #29 on: June 18, 2017, 12:20:44 AM »

I have no experience of this product, so please don’t take what follows as a recommendation. But based on the commercial world in general, I would like to defend the 60% gross margin. Compared to pretty much everything you buy on the High Street, 60% is low. Compared to the supplement industry in general, it’s very low. Compared to the pharmaceutical products that so many people rely on, it’s ludicrously low. In fact, pharmaceutical companies would laugh at 60% margins.

I'd have to agree with roger on this.  In my neck of the woods, we'd be looking at nearer a 100% markup.

This sounds interesting, thanks, Keira.  I'll investigate further.
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Wits_End
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« Reply #30 on: June 21, 2017, 11:56:40 PM »

It would be interesting to know if any members of this forum of longer standing have had experience with this product too.  No offence, guys, but it would certainly help re bona fides to hear from people who'd signed up to this forum more than a month ago.
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Jayne73
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« Reply #31 on: June 22, 2017, 09:17:16 AM »

Why should it matter how long someone has been signed up to the forum for? I'd love feedback from anyone regarding this product bona fide or non bona fide. I have had cfs for 15 years and I am about to try this product. I'd like to think that my feedback is as valued as anyone's.
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roger
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« Reply #32 on: June 22, 2017, 09:38:26 AM »

Hi Jayne

From time to time a new member appears and immediately promotes fake products. I've seen this many times over the years and I DON'T think this is so in this case. But I suspect that's the possibility that W_E was referring to.

So, please don't worry. Even if this was the case, and I repeat that I don't think it is - I'd have deleted the post if I did -, you didn't start the thread so it's not referring to you.

Good luck with the product, and I know that forum members will be looking forward to hearing how you get on with it.  smile

UPDATE - the first post on this thread made reference to testing by Oxford University. To be on the safe side I decided to look at this testing. I can find no reference to it on the Oxford Uni website or on the BioBalanced website, and surely they'd reference it on their website if it existed, wouldn't they? Maybe I've missed it, but for now I'd be a little suspicious. Therefore, if considering the purchase of this product, I'd ask the supplier to guide you to the appropriate page on the Oxford Uni website. If they can't, I wouldn't order. If you've already purchased, I'd do the same thing and return the product for a refund based on the fact that it was bought on the basis of false evidence if they can't provide it. Let me stress that the fact that I couldn't find any reference doesn't mean that it doesn't exist. But please be wary. Also,
 I think there's always a need to be wary of websites with no phone number

« Last Edit: June 22, 2017, 11:08:01 AM by roger » Logged

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brian c
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« Reply #33 on: June 22, 2017, 01:59:16 PM »

I have had my care coordinator look in to this for me and she can find no info apart from what is listed here no trails or tests and no contact number for the supplier  as I was considering purchasing but she doesn't think there would be anymore advantage over what I take now as I already take most if the ingredient's 
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roger
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« Reply #34 on: June 22, 2017, 02:13:13 PM »

Thanks for posting that, Brian. A member has drawn my attention to certain posts on this thread. I’ve considered these and looked into the posting history of the members involved. I am now more suspicious than I was earlier, though not yet suspicious enough to remove the thread. I’ve contacted the original poster and requested further information/evidence and await a response. Also, the member mentioned above told me something that the product providers offered which I find to be virtually impossible. The reason for this post is to suggest delaying any proposed purchase at this stage. The choice though is yours.
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KieraCole
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« Reply #35 on: June 22, 2017, 02:44:24 PM »

Hi Roger,
Sounds like you feel I'm a paid promoter of the product :( I'm sorry if I came across that way it wasn't my intention. I don't necessarily endorse any products and obviously do your own research to make your mind up on anything yourself rather than going of me. I just shared my experience, what I was told and what I observed. If you feel this is misleading, it's your site and I won't get angered if you decide to close my thread as spam and even ban me. I know what it's like to have CFS, and I know I was part of a study because I was filling questionnaires to record my progress. I'll try to get in touch with my last CFS group leader to ask her about the role of Oxford University in the trials
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roger
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« Reply #36 on: June 22, 2017, 03:02:43 PM »

Hi Kiera, thank you for responding so quickly, that’s much appreciated.

We regularly get ‘success stories’, many of which are fake, and we take them down very quickly. The reason your post wasn’t taken down is that it didn’t seem fake – everything you posted seems genuine. However, currently, I have two concerns –

1. Some ‘odd’ forum behaviour from two people who’ve posted, which displays some traits that spammers use.

2. You indicated Oxford uni testing, and BioBalance talk of seven years research but provide no details, which is VERY unusual for a supplement provider – they shout from the rooftops when they have good research/testing/trials. Also, no phone number???

I don’t know whether they are genuine or not – my instincts aren’t working well today – but I’m not convinced that they are. So unless someone can provide me with the ‘science’ I’ll maintain my ‘be wary’ stance. But I won’t shut down the thread, I’ll leave others to reach their own conclusions.

And I have no reason to ban you, preferring to accept that your objective in posting was to help others.
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brian c
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« Reply #37 on: June 22, 2017, 03:03:55 PM »

I will not be buying as I said I already use some of the ingredient's and the care co-ordinator see's no benefit compared to what I already take
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KieraCole
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« Reply #38 on: June 22, 2017, 03:22:14 PM »

Seems fair enough Roger, I appreciate that. If members are spamming, they ought to be banned
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roger
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« Reply #39 on: June 22, 2017, 03:29:17 PM »

Thanks for understanding, Kiera.
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adambeyoncelowe
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« Reply #40 on: June 25, 2017, 08:11:44 PM »

 I've sent a journalist request in a professional capacity, asking if they could contact me to discuss the product, any research and their ingredients. I was suspicious from the first post, because surely we'd have heard if there was a miracle cure. I'm going to follow up either way. If it works, people need to be talking about it, and I'm always an advocate for new medications that work (I was a big supporter of education around PrEP when it was first discovered as effective for preventing HIV, even when it wasn't a popular position).
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roger
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« Reply #41 on: June 26, 2017, 05:39:52 AM »

Thanks for posting that, Adam. It'll be interesting to see what you come up with.
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adambeyoncelowe
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« Reply #42 on: June 26, 2017, 08:42:38 AM »

The response basically says research is ongoing:

'Hi Adam. Oxford University isn't directly responsible for conducting our tests (our products have been tested independently on patients that have opted for treatment) although we have benefited considerably from the help of Oxford academics and resources. If you're interested, ***the bulk of Oxford's private research is geared towards GET and CBT***. We are still yet to finish conducting our studies, and at the early stages requesting all our customers to share their results after 6 months of taking our product with anyone it may help, rather than investing in flashy marketing until we conclude our studies. The product is a mixture of various ingredients proven to help with certain symptoms that act synergistically to help the majority of people with CFS. Best of luck with your health.' (emphasis mine)

The bit I'm curious about is 'proven to help with certain symptoms' and the collaboration with CBT/GET-focused Oxford academics. The former is what I'd like muster clarification on (what proof, exactly) and the latter is a cause for concern (did their own trial involve GET or just the supplement? If so, it's interesting to see which criteria they're using for ME/CFS...).
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roger
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« Reply #43 on: June 26, 2017, 09:31:22 AM »

Hi Adam,

I know from another member that that's the standard response they send to anyone who asks for further research/trials info.

I agree totally that what they sent is inadequate, but I'll be surprised if you get anything further  sad

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adambeyoncelowe
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« Reply #44 on: June 26, 2017, 09:57:26 AM »

Yes, it's all a bit sketchy. I doubt they'll speak about their trial until they finish the paper. But I'm not holding my breath if it's in support of GET. If it is, it's likely only going to be useful for those with mild CFS (probably not ME, per se) and those who are looking for this kind of treatment in the first place (i.e., a trial with significant bias). Rather like the recent GETSET trial, which was, unsurprisingly, co-authored by a specialist in 'functional and dissociative disorders', who believes in physio- and psychotherapy.
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roger
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« Reply #45 on: June 26, 2017, 10:04:22 AM »

Based purely on my own experiences, I do believe that CFS/ME involves all aspects - physical, mental, emotional and spiritual, but I don't believe that psychotherapy (as I understand it, and I may not understand it as well as I should) is a way forward.
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« Reply #46 on: June 28, 2017, 12:12:01 PM »

My issue isn't with physiotherapy or psychotherapy as positive steps for someone in recovery (i.e., rehabilitation to get you back to former levels of fitness and well-being once you've cleared the physical hurdles), but usually the CBT/GET crowd wants these as the *only* treatments and right from the get-go (pun not intended). That's dangerous, because many people with ME will get worse if they exercise in the acute phase. They need proper bedrest first, followed by medical interventions, before they're well enough to start any programme of physical exertion. We don't ask cancer patients to run around before chemotherapy, so we shouldn't be asking ME patients to put themselves at risk of injury before they're ready either.

More cynically, I fully believe that CBT and GET allow many doctors to push the responsibility and blame onto patients. Instead of having to think outside the box and admit they may not know what they're dealing with, they say it's up to us to get better--and if we don't, it's not their fault; it's because we didn't try hard enough or we're 'benefiting from the secondary gains' of illness.
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roger
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« Reply #47 on: June 28, 2017, 12:17:47 PM »

I absolutely agree 100%, adam.

But do you have any particular medical interventions in mind?  I've been involved in CFS/ME for twelve years, and I don't know of any.
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« Reply #48 on: June 29, 2017, 01:23:45 PM »

Well Rituximab and Imunovir are showing promise. I'd like more flexibility in what our doctors can do and prescribe. Many of us would be willing to take a chance if it gave us, well, a chance. At presence, we've got no chance--just CBT and GET which are as likely, if not more likely, to make us worse as better (25% to 17% according to GETSET).
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roger
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« Reply #49 on: June 29, 2017, 01:53:28 PM »

Yes, conventional UK testing is inadequate.  No doubt about that.  But the word 'prescribe' bothers me. If we're talking about allopathic doctors then prescribe means drugs, and whilst I fully accept that a few drugs can be life saving in acute situations, they rarely do anything of value in chronic situations.
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