January 19, 2019, 05:35:13 PM *
Welcome, Guest. Please login or register.
Did you miss your activation email?

Login with username, password and session length
Pages: [1]   Go Down
Print
Author Topic: Caregiver for my mum! Could do with some help.  (Read 189 times)
0 Members and 1 Guest are viewing this topic.
Lauren91
New Member
*
Offline Offline

Posts: 3


« on: January 01, 2019, 09:01:08 PM »

Hi all,
Iíve just registered in hope of some help and support for my mum who is a long term sufferer of fibromyalgia and CFS. She is going through a very bad relapse which I seem to think is from the stress of another unrelated illness. Sheís been in bed for over a month now and isnít even able to watch TV due to the fatigue being so bad and having poor concentration. I feel so helpless and it breaks my heart to see somebody who was once a very social outgoing person turn into somebody that doesnít want to see anybody and talk to anyone. Any advice would be so appreciated as I have no idea how to help her. Thanks in advance.
Logged
roger
Staff
Lifetime Member
*
Offline Offline

Gender: Male
Posts: 10343


After 12 years of trying, I'm now A OK


« Reply #1 on: January 02, 2019, 06:53:23 AM »

Hi Lauren, and welcome.

I'm really sorry that your mum is going through such a bad time at the moment. Initially, if you haven't already done so, I'd suggest that you request a home visit from your GP to set the ball rolling in excluding anything other than fibro and CFS that might be going on. This done, perhaps read through anything on the forum that you feel might be relevant than ask us any questions that this might produce.

Good luck and best wishes

Roger.
Logged

'Nothing is, but thinking makes it so'
Lauren91
New Member
*
Offline Offline

Posts: 3


« Reply #2 on: January 02, 2019, 01:28:18 PM »

Hi Roger, Thankyou so much for your reply, I really appreciate it. My mum is seeing her GP today which Iím hoping will help, although I am not getting my hopes up too much as they donít seem to understand her illness. Is there anything that I can suggest to her to help her or anything I can do myself to help her recover from her relapse? She is worried that sheís going to be bed bound for the rest of her life and although i keep reassuring her that she isnít thereís a big part of me that worries that she will be. My dad is very good at taking care of the practical side of care (cooking, cleaning etc) and I am trying hard to support her emotionally but still nothing is making her any better! Iíd really appreciate any advice that anyone can give as Iím getting desperate for her now and donít know where else to turn.
Logged
roger
Staff
Lifetime Member
*
Offline Offline

Gender: Male
Posts: 10343


After 12 years of trying, I'm now A OK


« Reply #3 on: January 02, 2019, 02:20:00 PM »

Hi Lauren,

I do understand your GP concerns, but perhaps he or she might be able to refer your mum to a specialist service?
For the here and now - the first thing is COMPLETE rest for as long as it takes, then get to understand 'pacing'. Beyond that, the things that helped me recover are outlined on this forum on the 'Roger's route to recovery' board.
I totally get your mother's fear that she'll be bed bound forever, so please reassure her that I was bed bound for a long time having got ill at age 58. I then took control of my recovery and am now a healthy 72 year old. So it CAN be done and despite what you might hear, age ISN'T a barrier.
For now though, do your best to ensure that your GP along with anyone he or she might refer your mum to, properly rules out ALL other possibilities for her current malaise. I'll cross my fingers for you that that happens  fingerscrossed  smile
« Last Edit: January 02, 2019, 02:26:24 PM by roger » Logged

'Nothing is, but thinking makes it so'
Lauren91
New Member
*
Offline Offline

Posts: 3


« Reply #4 on: January 02, 2019, 05:19:53 PM »

Hi Roger,
Thankyou again for your reply. My mum has seen her GP who has prescribed her with tablets for anxiety/low mood. This has given her some hope she may feel a little better (fingers crossed they work) I think sheíll be able to rest better if her anxiety/ depression is taken care of and then hopefully as she starts to feel a little better we can start trying to control this terrible illness. I haven started to read some of your posts on ur recovery and have found it very positive! I think what your doing is wonderful and Iím so glad Iíve found this site.
Logged
roger
Staff
Lifetime Member
*
Offline Offline

Gender: Male
Posts: 10343


After 12 years of trying, I'm now A OK


« Reply #5 on: January 02, 2019, 05:30:19 PM »

I'll  fingerscrossed with you then, Lauren. Yes, let's hope the anxiety drugs help, but if they do it's important to understand that they're not a LONG term solution.
Thanks for your kind words  smile
Logged

'Nothing is, but thinking makes it so'
Pages: [1]   Go Up
Print
Jump to:  

Black Rain by Crip

© Chronic Fatigue Syndrome

Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
XHTML | CSS